Who we are
We will no longer tolerate the inevitability of end stage kidney failure, and patients living in fear. It’s up to us to challenge the status quo and lead rapid change towards a world where lives aren’t limited by kidney disease.
We’re taking it on and we’re starting now. We can’t do it without you.
Our vision is to
free lives from the restrictions, fear, anxiety and life limiting nature of kidney disease.
Our purpose is to...
- Prevent kidney disease by finding ways to see it coming, and developing interventions to stop it happening.
- End kidney failure by learning how to spot disease early, how to identify and slow down or stop progression, and how to reverse or repair kidney damage.
- Transform treatments by making dialysis and transplantation more tolerable and effective, until better alternatives are available.
Leading a transformation in kidney health
Worldwide, around one in 10 people have chronic kidney disease, for which there is no cure. Here in the UK, 20 people develop kidney failure each
day, and join nearly 30,000 who need dialysis to survive. Five people every week die while on the waiting list for a kidney transplant.
Over the past decade some progress has been made in treating kidney disease, but not nearly enough. Kidney disease continues to rise, and history is repeating itself, with successive generations experiencing the same life-limiting health problems and inadequate treatments.
Enough is enough.
On behalf of everyone living with, affected by or at risk of kidney disease, the time has come for change, and we will lead that change. We pledge that over the next ten years we will drive a transformation in kidney health. We’ll do this by working with others to put it on the UK’s agenda. We’ll drive research and see it through so that discoveries quickly translate into life-changing advances. We’ll be responsive; adapting to changes in the landscape that affect kidney health.
Our actions for the next decade:
- Accelerate discoveries. We’ll fund, prompt and pave the way for a step-change in the research effort, to deliver major advances in our fundamental understanding of kidney health and disease.
- Make it count. We’ll make sure discoveries are put into practice, so that advances in research rapidly make a difference to people with or at risk of kidney disease.
- Rally the nation. We will put kidney disease on the UK’s agenda and build a movement to raise awareness and improve kidney health.
To deliver these actions, we need to be at the top of our game. We have a strategic programme to transform the organisation and strive for excellence in everything we do.
Our actions will help to change the future for people living with and at risk of kidney disease, so that by 2030 there will be:
- Better awareness. More people, particularly those in at risk groups, know how to look after their kidney health.
- Earlier diagnosis. New ways to detect kidney disease earlier so that people get treatment before irreversible damage is done.
- New treatments. New ways to slow disease progress so that kidney patients avoid dialysis or a transplant for longer.
- Better treatments. Technological advances in dialysis, to make it more tolerable and effective.
- Better kidney transplants. Advances that make transplants last longer, reduce the burden of treatment and monitoring, and improve quality of life.
- Kinder monitoring. A new and less invasive alternative to having multiple biopsies to monitor kidney disease.
- Encourage new models of healthcare delivery that improve efficiency and equity of kidney care so everyone in the UK gets the best quality treatment and support they need
Our memberships & affiliations
We are members of...
ABPI Patient Organisation Forum
Association of Medical Research Charities (AMRC)
Scottish Medicines Consortium (SMC) Patient Group Partners
Scottish Medicines Consortium (SMC) Public Involvement Network
All Wales Medicines Strategy Group's Patient and Public Involvement Group